A Wish for Wendy
Softball tournament benefiting Cystic Fibrosis research in honor of Wendy Carol Lipman who died 15 days after birth from cystic fibrosis.
Ambry Genetics
Testing for CF mutations. Offers a comprehensive screening of CF mutations, plus Poly T Variant analysis, and direct DNA sequencing of exon.
Billycook.com
Billy Cook battled cystic fibrosis and died. The site generates funding for patients of this deadly disease.
Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
Cystic Fibrosis Research Inc.
News about CF research. Site also has a newsletter available.
Cystic-L
Cystic fibrosis information and support, including a vibrant on-line community, via email, a Handbook of information and resources, photos of CFers, a CF Shop and bookstore.
CysticFibrosis.com
Internet community for cystic fibrosis patients, families and loved ones.
MyCysticFibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
North American Cystic Fibrosis Conference in New Orleans
Information on program and location.
Providence Cystic Fibrosis Center
Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.
Sharktank.org
Dedicated research for a cure for cystic fibrosis.
|
